Resources for Patients and Families

Pediatric Oncology Social Workers are helping children and families every day!

There are many resources available to children and their families during their treatment and during follow-up care.

Your pediatric oncology social worker can assist you finding the best resource for you and your family.

RESOURCES LISTING

Click on the resource category below that you wish to view.

ADVOCACY
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Alliance for Childhood Cancer

A group of member organizations, including APOSW, which work to advance research and policies to prevent cancer, and improve public education, and the diagnosis, treatment, supportive care and survivorship of children and adolescents with cancer.

Children’s Cause for Cancer Advocacy

Children’s Oncology Group and COG Survivorship Guidelines

Coalition Against Childhood Cancer (CAC2)

Mattie Miracle Foundation

National Coalition for Cancer Survivors

EDUCATION, SUPPORT AND GENERAL INFORMATION
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HOPE Portal
The Hope Portal offers families a robust list of organizations around the country that may be able to provide assistance to children with cancer and their families.

Alex’s Lemonade Stand Fund

American Cancer Society

American Childhood Cancer Organization

Be The Match/NMDP

Cancer Care

Cancer Support Community

Chai Lifeline

Children’s Organ Transplant Association
Provides fundraising assistance for children and young adults needing life-saving transplants.

Help Hope Live
Provides fundraising assistance for out of pocket costs to people needing life-saving transplants

Imerman Angels

LIVESTRONG Fertility

National Bone Marrow Transplant Link

National GRACE Foundation
The National GRACE Foundation provides FREE college admissions and financial aid counseling to pediatric cancer patients and survivors.

National Institutes of Health
Provides information on current medical research discoveries.

Pediatric Oncology Resources Center
Information, support, and resources, including college scholarships

Stupid Cancer

Together
Together is a new online resource powered by St. Jude Children’s Research Hospital. It offers dependable information and a community of support for anyone facing childhood cancer.

Ulman Foundation
The Ulman Foundation is a community of support for young adults, and their loved ones, impacted by cancer. Information, support, and resources.

Teens Living with Cancer
For teens with cancer who have lots of living to do! Provides pictures and stories of “real” teens with cancer.

The Bone Marrow Foundation
Information, support, and financial assistance.
Addresses young adult cancer through advocacy, support, outreach, mobile health, and social media.

RECREATIONAL
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Childhood Leukemia Foundation
Four primary programs to support kids with all forms of cancer: The Hope Binder, Hugs U Wear, Wish Baskets, and Keeping Kids Connected

Children’s Oncology Camping Association International
An organization to strengthen the international community of cancer camps through networking, advocacy, education, and other resources. Provides guidelines for best practices to member camps.

Camp Mak-A-Dream
Camp Mak A Dream provides a cost-free, intimate Montana setting for survivors and their families to develop lasting relationships and gain resiliency.

Cure Search for Children’s Cancer
Research funding and patient/family education. Cancer Care mobile app organizes information and can track mood, side effects, and blood counts.

Dream Foundation
Grants wishes for adults 18 years of age and older with a life-threatening illness and a life expectancy of one year or less.

First Descents
First Descents provides whitewater kayaking and other outdoor adventure experiences to promote emotional, psychological and physical healing for young adults with cancer.

Friends of Jacqueline
For children battling brain tumors and other childhood cancers. Serves to improve quality of life by pairing them with patients with local teams, clubs, and community groups.

Kids Wish Network
Grants wishes for kids between the ages of 3 and 18.

Granted Wish Foundation
Enriching the lives of physically challenged children and young adults by granting Sports and Celebrity Athlete Wishes

Make-A-Wish Foundation
Grants wishes for children with a life-threatening medical condition from ages 2 ½ and younger than 18 at the time of referral. Referral submitted online

Pablove Shutterbugs
Photography classes for cancer patients 6-18 years old.

Songs of Love
Personalized songs for children 1-21 years old -takes 4-8 weeks.

Team IMPACT
Connects children ages 5 – 16 with college athletic teams in their local community. Through the power of team, children experience improved confidence, optimism, and sense of belonging.

FINANCIAL
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Alex’s Lemonade Stand Fund
Travel For Care program provides financial assistance for travel for patients 21yo and younger diagnosed before 18yo and on active treatment.

B+ Foundation (Be Positive)
Provides financial assistance to families of children with cancer to minimize financial hardship directly attributed to the child’s illness. Utility bill or grant money. 21 & younger Funeral assistance

Bumble Bee Foundation
18 years & younger. Utility bill, unpaid medical bills, transportation expenses, work-related/supplemental income & funeral/memorial costs. Oncology patients

Cancer Care
Cancer diagnosis confirmed by oncology health care provider. Be in active treatment. Live in the US or Puerto Rico. Meet eligibility guidelines of 250% of the Federal Poverty Limit. Needs signature from a doctor, nurse, or social worker.

Clayton Dabney
Financial assistance to children 18 years old or younger. If under the age of 21 and diagnosed before turning 18 and still being treated in pediatric oncology the case may still qualify for assistance. Case must have progressed to late stage, terminal cancer. Family should have been struggling financially before diagnosis and unlikely to recover financially after the patient passes.

Family Reach
Cancer patients 17 & younger, active treatment or w/in 1 year of treatment. Young adults 18-30 years of age. Everyday needs (mortgage/rent, car payments/ins, utilities etc.) transportation costs to treatment. Must demonstrate a hardship Financial Planning

First Hand Foundation
Receiving care in the US, 18 years or younger, 19-21 may be considered if they are in a child-like mental state. Specific health care need. One request per year, maximum of three times in a child’s lifetime. Income qualifications (listed online). Equipment/supplies, lodging & travel.

Go 4 The Goal
Provides financial support and grants personal wishes to children with cancer. Also provide funds for Uber transportation.

Iron Matt
Financial assistance to patients under 18 who are undergoing treatment for brain or CNS cancer.

Julia’s Wings
Assistance with travel, lodging & other living expenses provided to children with life threatening hematological diseases, aplastic anemia, MDS, and PNH.

Kids Wish Network
Funeral assistance for patients 21 years of age and under.

Leukemia Lymphoma Society
Financial reimbursement for gas for gas, medications, and free literature about drugs, radiation therapy, blood and marrow transfusion and testing, and transportation. All ages

MBA Opens Doors
Rent/mortgage assistance to families w/child 21yo or younger or w/dependent adult child. Patient must have been hospitalized at least 7 days or at least 14 days of documented full-time home care.

Miracles 4 Kids
21 years or younger. Transitional housing, assistances with bill paying, emergency fund & funeral funds

National Children’s Cancer Society (NCCS)
Diagnosed with cancer, diagnosed before 18 & treated before 21 years old. Must be citizen of the US or green card. Guardian applying must have less than $5,000.00 in bank account to qualify. Transportation Assistance & Emergency Assistance Fund

National Marrow Donor Program – (Be The Match)
Provides financial assistance to patients and families for travel, food, and daily expenses. Only for Unrelated Donor transplants.

Pinky Swear
21 & younger & in active treatment. One bill pay per application, & one application is allowed per month. Rent/mortgage & car payments, gas & grocery cards, utility bills.

Pooh Maddan
Financial assistance available to young adults, between the ages of 18 and 35, who have cancer.

Rema Hort Mann Foundation
Provides financial assistance in an effort to enhance a patient’s social and emotional supports (ie: flying relatives from distant places, providing childcare, etc.)

SCID Angels For Life
Scholarship fund available to patients diagnosed with SCID and currently receiving treatment.

Small Miracles Foundation
17 years old or under, parents facing financial hardship. Bill payment directly to creditor.

Tyler Robinson Foundation
18 years or younger. Must have one working parent, family must be above poverty line. Provides $1000 a month for rent and $5000 in travel.

HAIR PROSTHESIS
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Childhood Leukemia Foundation
Provides free wigs or hair hat for children undergoing treatment for cancer that have lost their hair.

Locks of Love
Provides hair prosthesis and wigs. Must have a prescription from doctor. There may also be a fee based on income.

Wigs For Kids
Provides free custom fit wigs for children with hair loss due to a medical condition.

TRANSPORTATION
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Air Charity Network
A network of organizations covering specific geographical areas and coordinating volunteer pilot flights in the continental United States as well as Alaska and Hawaii.

Angel Flight
Arranges free flights by transporting patients and their families to hospitals in private planes for medical treatment.

Angel MedFlight
Provides air and ground transportation to and from medical facilities for critical and specialized care. Medical critical care team on board.

Children’s Flight of Hope
Provides free private air transportation to and from medical facilities for critically or injured children from birth until 17 years old (with one caregiver/guardian) due to medical, financial, or logistical reasons, are unable to travel to their destinations by any other mode.

Compass To Care
Travel assistance for patients under 18yo diagnosed with cancer and in active cancer treatment. Family must also have a demonstrated financial need.

Miracle Flights
Air transportation to/from treatment centers for pediatric and adult patients. Children can possibly travel with both parents; adults can possibly travel with 1 caregiver.

Miracle Flights for Kids
Round trip commercial flights for treatment, 2nd opinions, medical camps, education conferences for patients and parents. No limit on the travel needed

Providing references to other organizations or links to other websites does not imply that APOSW endorses the information or services provided by them. Those organizations and/or websites are responsible solely for the information they provide. Listing of resources and websites is for informational purposes only.

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